Thank you guys
MommC and DRloca, she had 3 neurologists from sick kids,,, including the head of th department. the first one didn't even belived me when I told them she was having seizures and I had to almost hit them with a bat to get an EEG,, she will be 5 in Jan and her seizures are called Myoclonics (drop attacks) they are very fast and they look like those little dolls on the Robactixe (sp) commercial, as if she was falling asleep,, like the old people "cabezeando sentado".
I asked for a video EEG and they flat out said no,,, so you know,,,there is no way to get it here as we don't have pay-out-of-your-pocket EEG practices here in TO and I am hoping to get it done down in the DR..... I want to know what is going on with her brain.
I talked and talked, but they don't listen,,, they said she is fine,, but they continue to medicate.... if they are no longer happening in her brain,,, she should no continue taking medication,,,but all they said is "They are controlled" and I hate that expression,,, I am afraid or a break when we travel and I would like her to have a neuro in SD that we can contact if we need to.
Her pediatrician in SD is Dr. Mena from CGO, but I tried for over 2 weeks now to contact him with no luck.
Thank you for the referals!!!!
CB
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